Ten years ago, I became a mom for the second time to this beautiful baby boy…Amaan…. still remember being absolutely mesmerized by this perfect bundle of joy.
It did not take too long for reality to check in – Amaan suffered from major health issues. I can never forget those pain stricken gloomy days at the AKUH…the longest days of my life were in that intensive neonatal care unit.
I believed in Allah and His miracles unconditionally. I started treating Amaan normally. By the grace of God, his liver normalized and he walked when he was five and started talking. Things looked better and so did he. I got him enrolled to a mainstream school.
Amaan according to the doctors had some rare and complicated issues…needed a lot of investigation…kept all the doctors scratching their heads…confused to the core…nobody knew what he really had…unknown…some said…others titled him exceptionally rare.
In the whole process, I was just lost, never felt this defeated, the despair, my hopelessness, and my tears was all I was carrying for almost a fortnight, but amidst of all this, the moments I shared with Amaan alone were magical. He did not seem in pain or sad. I mean there were tons of things going on with him according to every single doctor, but Amaan from the very first go was all positive and never dull, and all his smiles started giving me the courage to accept, believe, rise and take charge as a mom of a child with serious health issues. You need to get out of the denial factor, accept your child’s issues, believe in your God and yourself, and start dealing with it – all of this was resonating within me.
Then, I started learning about amaans illness. I researched and learned everything about that rare genetic disease all the doctors seemed to be defeated by. Amaans liver was threatened because of it.
I got hold of the best liver specialist here and did exactly what he said. I even took amaan to USA for further investigations, and came back with a heavy heart as the doctors abroad did not have much clue either so I was all alone again, but again got my courage back from that awesome smiles of Amaan, telling me, helping me that this shall pass too.
Amaan was developmentally delayed. He achieved all his milestones very late, but he did achieve them. I could just go on and on about Amaan’s issues, but my point is that as a mom you need to rise above every situation. God will test each one of us – you just have to hold yourself strongly and never ever give up on your child. You need to cut out the negativities in life, eliminate the depression, and you might not have the address but at least your positive outlook will guide you to that right path.
I did the same thing. I believed in Allah and His miracles unconditionally. I started treating Amaan normally. By the grace of God, his liver normalized and he walked when he was five and started talking. Things looked better and so did he. I got him enrolled to a mainstream school.
At present, he still has issues like autism, adhd, epilepsy…but is still my strength, and will continue to be.
I decided to lean in, it worked for me. It can for you also so never ever give up. God doesn’t want it and nor our children.